Результати пошуку - Elizabeth E. Palmer

Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies за авторством Suzanne M. Nevin, Claire E. Wakefield, Ann Dadich, Fleur LeMarne, Rebecca Macintosh, Erin Beavis, Rani Sachdev, Ann Bye, Kenneth Nunn, Elizabeth E. Palmer

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'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics за авторством Christina Q. Nguyen, Didu Kariyawasam, Kristine Alba‐Concepcion, Sarah Grattan, Kate Hetherington, Claire E. Wakefield, Susan Woolfenden, Russell C. Dale, Elizabeth E. Palmer, Michelle A. Farrar

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