GDPR and Biobanking Individual Rights, Public Interest and Research Regulation across Europe /
This open access book focuses on the discrepancies in biobank research regulations that are among the most significant hurdles to effective research collaboration. The General Data Protection Regulation (GDPR) has established stringent requirements for the processing of health and genetic data, whil...
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| Other Authors: | , , |
| Format: | Electronic eBook |
| Language: | English |
| Published: |
Cham :
Springer International Publishing : Imprint: Springer,
2021.
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| Edition: | 1st ed. 2021. |
| Series: | Law, Governance and Technology Series,
43 |
| Subjects: | |
| Online Access: | Link to Metadata |
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Table of Contents:
- Part I Setting the scene
- Introduction: Individual rights, the public interest and biobank research 4000 (8)
- Genetic data and privacy protection
- Part II GDPR and European responses
- Biobank governance and the impact of the GDPR on the regulation of biobank research
- Controller' and processor's responsibilities in biobank research under GDPR
- Individual rights in biobank research under GDPR
- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research
- A Pan-European analysis of Article 89 implementation and national biobank research regulations
- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations
- Part III National insights in biobank regulatory frameworks
- Selected 10-15 countries for reports: Germany
- Greece
- France
- Finland
- Sweden
- United Kingdom
- Part IV Conclusions
- Reflections on individualrights, the public interest and biobank research, ramifications and ways forward. .