ME/CFS - the Severely and Very Severely Affected
Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely i...
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Format: | Electronic Book Chapter |
Language: | English |
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Basel
MDPI - Multidisciplinary Digital Publishing Institute
2023
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Online Access: | DOAB: download the publication DOAB: description of the publication |
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100 | 1 | |a Friedman, Kenneth |4 edt | |
700 | 1 | |a Bateman, Lucinda |4 edt | |
700 | 1 | |a De Meirleir, Kenny Leo |4 edt | |
700 | 1 | |a Friedman, Kenneth |4 oth | |
700 | 1 | |a Bateman, Lucinda |4 oth | |
700 | 1 | |a De Meirleir, Kenny Leo |4 oth | |
245 | 1 | 0 | |a ME/CFS - the Severely and Very Severely Affected |
260 | |a Basel |b MDPI - Multidisciplinary Digital Publishing Institute |c 2023 | ||
300 | |a 1 electronic resource (358 p.) | ||
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506 | 0 | |a Open Access |2 star |f Unrestricted online access | |
520 | |a Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider's view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, "Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS | ||
540 | |a Creative Commons |f https://creativecommons.org/licenses/by/4.0/ |2 cc |4 https://creativecommons.org/licenses/by/4.0/ | ||
546 | |a English | ||
650 | 7 | |a Humanities |2 bicssc | |
650 | 7 | |a Social interaction |2 bicssc | |
653 | |a Adolescence | ||
653 | |a Adulthood | ||
653 | |a Apnea | ||
653 | |a Apnea-hypopnea index | ||
653 | |a Bedbound | ||
653 | |a Cardiac Function | ||
653 | |a Cardiopulmonary Exercise Testing | ||
653 | |a Caregivers | ||
653 | |a Case Study | ||
653 | |a Cerebral Blood Flow | ||
653 | |a Chronic Fatigue Syndrome | ||
653 | |a Clinical Presentation | ||
653 | |a Compassion In Practice | ||
653 | |a Diagnosis | ||
653 | |a Economic Impact | ||
653 | |a Education | ||
653 | |a Enteral Nutrition | ||
653 | |a EUROMENE | ||
653 | |a Europe-Wide | ||
653 | |a Grief | ||
653 | |a Homebound | ||
653 | |a Illness progression | ||
653 | |a Immunoglobulin Therapy | ||
653 | |a Infection | ||
653 | |a Isolation | ||
653 | |a IVIgG | ||
653 | |a Jarisch&ndash | ||
653 | |a Herxheimer Reaction | ||
653 | |a Laboratory Tests | ||
653 | |a Lived experience | ||
653 | |a Loss | ||
653 | |a Malnutrition | ||
653 | |a Mental Health | ||
653 | |a ME/CFS | ||
653 | |a Moderately Ill | ||
653 | |a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | ||
653 | |a Orthostatic Stress | ||
653 | |a Parenteral nutrition | ||
653 | |a Patient Assessment | ||
653 | |a Patient Management | ||
653 | |a Prevention | ||
653 | |a Psychological Causation | ||
653 | |a Psychosocial | ||
653 | |a Severely Ill | ||
653 | |a Sleep | ||
653 | |a Social Isolation | ||
653 | |a Stigma | ||
653 | |a Student Learning | ||
653 | |a Suicidality | ||
653 | |a Symptoms | ||
653 | |a Telemedicine | ||
653 | |a Trauma | ||
653 | |a Treatment | ||
653 | |a Tube feeding | ||
653 | |a Very Severely III | ||
856 | 4 | 0 | |a www.oapen.org |u https://mdpi.com/books/pdfview/book/8496 |7 0 |z DOAB: download the publication |
856 | 4 | 0 | |a www.oapen.org |u https://directory.doabooks.org/handle/20.500.12854/132456 |7 0 |z DOAB: description of the publication |