ME/CFS - the Severely and Very Severely Affected

Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely i...

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Other Authors: Friedman, Kenneth (Editor), Bateman, Lucinda (Editor), De Meirleir, Kenny Leo (Editor)
Format: Electronic Book Chapter
Language:English
Published: Basel MDPI - Multidisciplinary Digital Publishing Institute 2023
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Online Access:DOAB: download the publication
DOAB: description of the publication
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700 1 |a Friedman, Kenneth  |4 oth 
700 1 |a Bateman, Lucinda  |4 oth 
700 1 |a De Meirleir, Kenny Leo  |4 oth 
245 1 0 |a ME/CFS - the Severely and Very Severely Affected 
260 |a Basel  |b MDPI - Multidisciplinary Digital Publishing Institute  |c 2023 
300 |a 1 electronic resource (358 p.) 
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520 |a Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider's view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, "Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS 
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546 |a English 
650 7 |a Humanities  |2 bicssc 
650 7 |a Social interaction  |2 bicssc 
653 |a Adolescence 
653 |a Adulthood 
653 |a Apnea 
653 |a Apnea-hypopnea index 
653 |a Bedbound 
653 |a Cardiac Function 
653 |a Cardiopulmonary Exercise Testing 
653 |a Caregivers 
653 |a Case Study 
653 |a Cerebral Blood Flow 
653 |a Chronic Fatigue Syndrome 
653 |a Clinical Presentation 
653 |a Compassion In Practice 
653 |a Diagnosis 
653 |a Economic Impact 
653 |a Education 
653 |a Enteral Nutrition 
653 |a EUROMENE 
653 |a Europe-Wide 
653 |a Grief 
653 |a Homebound 
653 |a Illness progression 
653 |a Immunoglobulin Therapy 
653 |a Infection 
653 |a Isolation 
653 |a IVIgG 
653 |a Jarisch&ndash 
653 |a Herxheimer Reaction 
653 |a Laboratory Tests 
653 |a Lived experience 
653 |a Loss 
653 |a Malnutrition 
653 |a Mental Health 
653 |a ME/CFS 
653 |a Moderately Ill 
653 |a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 
653 |a Orthostatic Stress 
653 |a Parenteral nutrition 
653 |a Patient Assessment 
653 |a Patient Management 
653 |a Prevention 
653 |a Psychological Causation 
653 |a Psychosocial 
653 |a Severely Ill 
653 |a Sleep 
653 |a Social Isolation 
653 |a Stigma 
653 |a Student Learning 
653 |a Suicidality 
653 |a Symptoms 
653 |a Telemedicine 
653 |a Trauma 
653 |a Treatment 
653 |a Tube feeding 
653 |a Very Severely III 
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856 4 0 |a www.oapen.org  |u https://directory.doabooks.org/handle/20.500.12854/132456  |7 0  |z DOAB: description of the publication