Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life
Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...
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| Formato: | Recurso Electrónico Capítulo de Livro |
| Idioma: | inglês |
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Florence
Firenze University Press
2021
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| Colecção: | Proceedings e report
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| Acesso em linha: | DOAB: download the publication DOAB: description of the publication |
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