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Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

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Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

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Bibliografske podrobnosti
Glavni avtor:	Pilo, Cinzia (auth)
Drugi avtorji:	Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth)
Format:	Elektronski Book Chapter
Jezik:	angleščina
Izdano:	Florence Firenze University Press 2021
Serija:	Proceedings e report
Teme:	Social research & statistics Epidermolysis Bullosa Patient-centered approach Quality of Life Pseudo-Delphi
Online dostop:	DOAB: download the publication DOAB: description of the publication
Oznake:	Označite Brez oznak, prvi označite!

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