Sustainable generation of patient‐led resources in a learning health system

• Main Authors: Jennie David (Author), Catalina Berenblum Tobi (Author), Samantha Kennedy (Author), Alexander Jofriet (Author), Madeleine Huwe (Author), Rosa Kelekian (Author), Melissa Neihart (Author), Michelle Spotts (Author), Michael Seid (Author), Peter Margolis (Author), ImproveCareNow Pediatric IBD Learning Health System (Author)
• Format: Book
• Published: Wiley, 2021-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Patient and Family Advisory Councils (PFACs) are an emerging mechanism to integrate patient and family voices into healthcare. One such PFAC is the Patient Advisory Council (PAC) of the ImproveCareNow (ICN) network, a learning health system dedicated to advancing the care of indi...