Informational support for families of children with autism spectrum disorder

ABSTRACT Objective: To identify the sources of informational support used by families of children with Autism Spectrum Disorder. Method: Qualitative and descriptive research carried out in three health institutions and three teaching institutions in Paraná, Ceará and Amapá. 55 family members part...

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Main Authors: Gisele Weissheimer (Author), Verônica de Azevedo Mazza (Author), Cibelly Aliny Siqueira Lima Freitas (Author), Silvana Rodrigues da Silva (Author)
Format: Book
Published: Universidade Federal do Rio Grande do Sul, 2021-02-01T00:00:00Z.
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Summary:ABSTRACT Objective: To identify the sources of informational support used by families of children with Autism Spectrum Disorder. Method: Qualitative and descriptive research carried out in three health institutions and three teaching institutions in Paraná, Ceará and Amapá. 55 family members participated who responded to semi-structured interviews, between September 2018 and 2019. Thematic categorical analysis and the resources of Qualitative Data Analysis Software were used. Results: Families find informational support from several sources, both formal and informal, such as the internet and other sources (books, Workshops, courses, television). Conclusion: Families use different sources of information, however, often incomplete and contradictory, which can generate a new demand on health professionals, in order to integrate access to information in the health care process, since they must be considering benefits and weaknesses that this represents for society.
Item Description:1983-1447
10.1590/1983-1447.2021.20200076