Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

• প্রধান লেখক: Maurizio Macaluso (Author), Marc E Rothenberg (Author), Thomas Ferkol (Author), Pierce Kuhnell (Author), Henry J Kaminski (Author), David W Kimberlin (Author), Michael Benatar (Author), Mirna Chehade (Author)
• বিন্যাস: গ্রন্থ
• প্রকাশিত: JMIR Publications, 2024-02-01T00:00:00Z.
• বিষয়গুলি: article
• অনলাইন ব্যবহার করুন: Connect to this object online.

BackgroundWith more than 103 million cases and 1.1 million deaths, the COVID-19 pandemic has had devastating consequences for the health system and the well-being of the entire US population. The Rare Diseases Clinical Research Network funded by the National Institutes of Health was strategically po...