The Value of Cognitive Pretesting: Improving Validity and Revealing Blind Spots through the Development of a Newborn Screening Parent Experiences Survey
Surveys are used to gather a range of data on newborn screening (NBS) processes. We describe the development of a survey about parents' NBS experiences, in the United States, informed by cognitive pretest interviews among parents with varying NBS test results (true-positive, false-positive, nor...
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Main Authors: | Norma-Jean Simon (Author), Anne Atkins (Author), Brianne Miller (Author), Natasha Bonhomme (Author), Beth Tarini (Author) |
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Format: | Book |
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MDPI AG,
2021-07-01T00:00:00Z.
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