Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study

• Main Authors: Jakelinne Reis Sousa Vilanova (Author), Cristianne Teixeira Carneiro (Author), Karla Nayalle de Souza Rocha (Author), Mychelangela de Assis Brito (Author), Ruth Cardoso Rocha (Author), Adelianna de Castro Costa (Author), Maria Augusta Rocha Bezerra (Author)
• Format: Book
• Published: Universidade Federal do Rio Grande do Sul, 2022-05-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Summary

ABSTRACT Objective: To analyze the maternal burden related to the care of children diagnosed with autism spectrum disorder. Method: Study with a mixed-method sequential explanatory design held at the Association of Friends and Families of Special Children and in a WhatsApp® Messenger group, with 51 (quantitative phase) and six (qualitative phase) mothers, between January and October 2019. For data collection, in the quantitative phase, a sociodemographic, economic and child care characterization form and a Zarit Burden Interview instrument were used. Semi-structured interview was used in the qualitative phase. Descriptive bivariate and multivariate analysis (quantitative) and Bardin analysis (qualitative) were performed. Results: A total of 64.7% mothers felt burdened, with mild to moderate burden (52.9%). Four analytical categories on elements that trigger maternal burden emerged. Conclusions: There is an urgent need to identify maternal burden related to the care of children with autism spectrum disorder, during assistance in Primary Health Care.

Item Description

1983-1447
10.1590/1983-1447.2022.20210077.en