An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)

Abstract Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK) and internationally to report and monitor patients' subjective assessments of their symptoms and functional status and also their quality of life. Whilst the importance of involving the public in PROM...

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Main Authors: J. Carlton (Author), T. Peasgood (Author), S. Khan (Author), R. Barber (Author), J. Bostock (Author), A. D. Keetharuth (Author)
Format: Book
Published: SpringerOpen, 2020-01-01T00:00:00Z.
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042 |a dc 
100 1 0 |a J. Carlton  |e author 
700 1 0 |a T. Peasgood  |e author 
700 1 0 |a S. Khan  |e author 
700 1 0 |a R. Barber  |e author 
700 1 0 |a J. Bostock  |e author 
700 1 0 |a A. D. Keetharuth  |e author 
245 0 0 |a An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs) 
260 |b SpringerOpen,   |c 2020-01-01T00:00:00Z. 
500 |a 10.1186/s41687-019-0172-8 
500 |a 2509-8020 
520 |a Abstract Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK) and internationally to report and monitor patients' subjective assessments of their symptoms and functional status and also their quality of life. Whilst the importance of involving the public in PROM development to increase the quality of the developed PROM has been highlighted this practice is not widespread. There is a lack of guidance on how public involvement (PI) could be embedded in the development of PROMs, where the roles can be more complex than in other types of research. This paper provides a timely review and sets out an emerging framework for fully incorporating PI into PROM development. 
546 |a EN 
690 |a Public involvement (PI) 
690 |a Patient and Public Involvement (PPI) 
690 |a Patient reported outcome measures (PROMs) 
690 |a Questionnaire 
690 |a Public aspects of medicine 
690 |a RA1-1270 
655 7 |a article  |2 local 
786 0 |n Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-10 (2020) 
787 0 |n https://doi.org/10.1186/s41687-019-0172-8 
787 0 |n https://doaj.org/toc/2509-8020 
856 4 1 |u https://doaj.org/article/34bff77056d44b5d92c2b9bbe788d1e5  |z Connect to this object online.