Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study

• Main Authors: Castro, Aimee R (Author), Chougui, Khadidja (Author), Bilodeau, Claudette (Author), Tsimicalis, Argerie (Author)
• Formato: Livro
• Publicado em: JMIR Publications, 2019-12-01T00:00:00Z.
• Assuntos: article
• Acesso em linha: Connect to this object online.

BackgroundOsteogenesis imperfecta (OI) is a rare genetic condition that can lead to frequent debilitating bone fractures. Family caregivers of children with OI face unique challenges in providing care, which may include limited access to information about the condition, feelings of distress, and exp...