Psychobehavioral factors and family functioning in mucopolysaccharidosis: preliminary studies

• Główni autorzy: Daniel Almeida do Valle (Autor), Tiago dos Santos Bara (Autor), Vanessa Furlin (Autor), Mara Lúcia Schmitz Ferreira Santos (Autor), Mara L. Cordeiro (Autor)
• Format: Książka
• Wydane: Frontiers Media S.A., 2024-01-01T00:00:00Z.
• Hasła przedmiotowe: article
• Dostęp online: Connect to this object online.

IntroductionMucopolysaccharidoses (MPS) constitute a group of progressive and multisystemic inherited metabolic diseases that profoundly affect both the mental health of patients and the wellbeing of their families. This study aims to evaluate the impact of MPS on family functioning and related fact...