Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program's Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study

• Main Authors: Ashima Singh (Author), Marci K Sontag (Author), Mei Zhou (Author), Mahua Dasgupta (Author), Tessa Crume (Author), Morgan McLemore (Author), Najibah Galadanci (Author), Eldrida Randall (Author), Nicole Steiner (Author), Amanda M Brandow (Author), Kathryn Koch (Author), Joshua J Field (Author), Kathryn Hassell (Author), Angela B Snyder (Author), Julie Kanter (Author)
• Format: Book
• Published: JMIR Publications, 2023-06-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundSickle cell disease (SCD) was first recognized in 1910 and identified as a genetic condition in 1949. However, there is not a universal clinical registry that can be used currently to estimate its prevalence. The Sickle Cell Data Collection (SCDC) program, funded by the Centers for Disease...