Importance of national and international registries of inborn errors of metabolism

In the subject of rare diseases, experience and knowledge is limited. With a rare disease registry, longitudinal data can be added to increase information of them and to improve the quality of medical care and the patient outcome. Registries, unlike randomized controlled trials, provide a source of...

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Bibliographic Details
Main Author: Roberto Giugliani (Author)
Format: Book
Published: Instituto Nacional de Pediatría, 2014-07-01T00:00:00Z.
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3rd Floor Main Library

Holdings details from 3rd Floor Main Library
Call Number: A1234.567
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