Importance of national and international registries of inborn errors of metabolism
In the subject of rare diseases, experience and knowledge is limited. With a rare disease registry, longitudinal data can be added to increase information of them and to improve the quality of medical care and the patient outcome. Registries, unlike randomized controlled trials, provide a source of...
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Instituto Nacional de Pediatría,
2014-07-01T00:00:00Z.
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