A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia
Abstract Background Novel, pragmatic, patient-centered strategies are needed to ensure fit-for-purpose patient-reported outcomes (PRO) instruments in clinical trial research for rare diseases such as myelodysplastic syndromes (MDS), acute myeloid leukemia (AML), and chronic myelomonocytic leukemia (...
Saved in:
Main Authors: | Jill A. Bell (Author), Aaron Galaznik (Author), Farrah Pompilus (Author), Sara Strzok (Author), Rafael Bejar (Author), Fatima Scipione (Author), Robert J. Fram (Author), Douglas V. Faller (Author), Stefan Cano (Author), Patrick Marquis (Author) |
---|---|
Format: | Book |
Published: |
SpringerOpen,
2019-06-01T00:00:00Z.
|
Subjects: | |
Online Access: | Connect to this object online. |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
Similar Items
-
Measuring patient-reported physical functioning and fatigue in myelodysplastic syndromes using a modular approach based on EORTC QLQ-C30
by: Antoine Regnault, et al.
Published: (2021) -
Hypomethylating Chemotherapeutic Agents as Therapy for Myelodysplastic Syndromes and Prevention of Acute Myeloid Leukemia
by: Vincent G. Sorrentino, et al.
Published: (2021) -
TP53 mutation in newly diagnosed acute myeloid leukemia and myelodysplastic syndrome
by: Pimjai Niparuck, et al.
Published: (2021) -
Erythroderma in a patient with chronic myelomonocytic leukemia
by: Nicole Trepanowski, BS, et al.
Published: (2022) -
Juvenile Myelomonocytic Leukemia: A diagnostic dilemma
by: Nidhi Srivastava, et al.
Published: (2022)