Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

• Main Authors: Anne M. Rentz (Author), Anne M. Skalicky (Author), Zhimei Liu (Author), David W. Dunn (Author), Michael D. Frost (Author), Jo Anne Nakagawa (Author), Judith Prestifilippo (Author), Qayyim Said (Author), James W. Wheless (Author)
• Format: Book
• Published: SpringerOpen, 2018-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Tuberous sclerosis complex (TSC) is a rare genetic disorder characterized by benign tumors in multiple organs, including non-cancerous kidney lesions known as renal angiomyolipomas. This study's objective is to describe the age-stratified morbidity, treatment patterns, and h...