Transitions experienced by mothers of children/adolescents with sickle cell disease in the context of the COVID-19 pandemic

• Main Authors: Luana Santana Brito (Author), Juliane Batista Costa Teixeira (Author), Aisiane Cedraz Morais (Author), Luciano Marques dos Santos (Author), Cleuma Sueli Santos Suto (Author), Coretta Melissa Jenerette (Author), Evanilda Souza de Santana Carvalho (Author)
• Format: Book
• Published: Universidade Federal do Rio Grande do Sul, 2023-06-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.
• Notes: 1983-1447; 10.1590/1983-1447.2023.20220075.en
• Keywords: COVID-19. Chronic disease. Anemia; sickle cell. Nursing. Family; Nursing; RT1-120
• Source: Revista Gaúcha de Enfermagem, Vol 44 (2023)

ABSTRACT Objective: To analyze the transitions experienced by mothers and children/adolescents with sickle cell disease after the emergence of the COVID-19 pandemic. Method: A qualitative study involving 19 mothers of children and adolescents with sickle cell disease. Data were obtained through semi-structured interviews via WhatsApp, followed by Thematic Analysis and Descending Hierarchical Classification with the help of Interface de R pour les Analyses Multidimensionnelles de Texteset de Questionnaires and interpreted in the light of Afaf Meleis' Transition Theory. Results: Support from family members for displacement; mothers' adherence to the routine of daily stimuli and physical exercises favored healthy transitions; lack of remote health care; low socioeconomic resources; interruption of the physiotherapy service; and maternal overload favor unhealthy transitions. Final considerations: Efforts/movements by mothers ensure the healthy transition of children/adolescents with sickle disease during the pandemic, while supporting their unhealthy transition.