Parental Experiences of Raising a Child With Medium Chain Acyl-CoA Dehydrogenase Deficiency
Newborn screening enabling early diagnosis of medium chain acyl-CoA dehydrogenase deficiency (MCADD) has dramatically improved health outcomes in children with MCADD. Achieving those outcomes depends on effective management by parents. Understanding parental management strategies and associated anxi...
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Main Authors: | Hilary Piercy (Author), Katarzyna Machaczek (Author), Parveen Ali (Author), Sufin Yap (Author) |
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Format: | Book |
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SAGE Publishing,
2017-05-01T00:00:00Z.
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Online Access: | Connect to this object online. |
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