Inalienable data: Ethical imaginaries of de-identified health data ownership
Many legal, ethical, and regulatory frameworks allow de-identified health data to be shared for research without patients' opt-in consent. However, there may be public concerns about this practice, as people may feel they should have some say in how such data is used. This paper introduces the...
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| Main Authors: | , , |
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| Format: | Book |
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Elsevier,
2023-12-01T00:00:00Z.
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A1234.567 |
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