Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions

Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic...

Full description

Saved in:
Bibliographic Details
Main Authors: Bruna Gabrielle de Araújo Silva (Author), Amanda Narciso Machado (Author), Vanessa Medeiros da Nóbrega (Author), Renata Cardoso Oliveira (Author), Elenice Maria Cecchetti Vaz (Author), Neusa Collet (Author)
Format: Book
Published: Universidade Federal de Santa Maria, 2020-09-01T00:00:00Z.
Subjects:
Online Access:Connect to this object online.
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic diseases, residents of the city of João Pessoa, Paraiba, Brazil. Data was collected from November 2017 to June 2018 through semi-structured interviews and submitted to inductive thematic analysis. Results: the health care network for children/adolescents with chronic diseases is disjointed and the care actions fragmented; families design their own therapeutic itineraries and do not receive support from e professionals/services in care management. Conclusion: disarticulation in the planning of care actions in health care networks, combined with punctual and discontinuous care for children/adolescents with chronic diseases and their family weaken and impoverish care management.
Item Description:2179-7692
2179-7692
10.5902/2179769242529