Pediatric epidermolysis bullosa - psychosocial impact and the importance of palliative care based on 5 clinical cases
Introduction and Objectives: Epidermolysis bullosa (EB) is a rare genodermatosis caused by pathogenic variants in several genes leading to epithelial fragility with blisters, erosions and ulcerations following minor trauma. Given the affection of any epithelial- lined organ, it can result in several...
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Main Authors: | Inês Pais-Cunha (Author), Paula Guerra (Author), Alice Porto- (Author), Laura Leite-Almeida (Author), Nuno Gomes (Author), Alberto Mota (Author), Irene Carvalho (Author) |
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Format: | Book |
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2024-01-01T00:00:00Z.
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