Long-term follow-up of epidermolysis bullosa in real practice shows stability of the Epidermolysis Bullosa Disease Activity and Scarring Index and improvement with some off-label therapies - Genevieve Ho, BMed/MB, MMed; Matthew Gibson, MBBS, MMed, DCH; Nooshafarin Kazemikhoo, MD, PhD; Dedee F. Murrell, MA, BMBCh, MD (Elsevier, 2022)