Strategies for crowdsourcing hearing health information: a comparative study of educational programs and volunteer-based campaigns on Wikimedia

• Main Authors: Thais C. Morata (Author), Fernanda Zucki (Author), Adriano Jorge Arrigo (Author), Priscila Carvalho Cruz (Author), Wei Gong (Author), Hector Gabriel Corrale de Matos (Author), Alexandre Alberto Pascotto Montilha (Author), João Alexandre Peschanski (Author), Maria Julia Cardoso (Author), Adriana Bender Moreira Lacerda (Author), Ana Paula Berberian (Author), Eliene Silva Araujo (Author), Débora Luders (Author), Josilene Luciene Duarte (Author), Regina Tangerino de Souza Jacob (Author), Shelly Chadha (Author), Daniel Mietchen (Author), Lane Rasberry (Author), Katia de Freitas Alvarenga (Author), Lilian Cassia Bornia Jacob (Author)
• Format: Book
• Published: BMC, 2024-09-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.
• Notes: 10.1186/s12889-024-20105-8; 1471-2458
• Keywords: Science communication; Hearing loss; Hearing health; Educational programs; Wikimedia; Misinformation; Public aspects of medicine; RA1-1270
• Source: BMC Public Health, Vol 24, Iss 1, Pp 1-16 (2024)

Abstract Background Several health institutions developed strategies to improve health content on Wikimedia platforms given their unparalleled reach. The objective of this study was to compare an online volunteer-based Wikimedia outreach campaign with university course Wikipedia assignments (both focused on improving hearing health content in Wikimedia's public digital knowledge archives), in terms of the reach of the contributions and the extent of the participants' input. A secondary objective was to examine the feasibility and the implementation of the different strategies. Methods The research team partnered for the (1) coordination of improvements in hearing and healthcare content through educational programs using Wikimedia platforms, (2) participation in the global campaign Wiki4WorldHearingDay2023 and (3) evaluation of the proposed strategies. Metrics used in the comparison of the two strategies included the number of articles edited, number of views of the edited articles (as reach) and the extent of edits, captured as the number of words. The feasibility evaluation included assessing recruitment success and the implementation of the proposed plan among faculty, students from various university programs, and volunteers representing different constituencies. Results The effort increased the availability of quality plain language information on hearing conditions and hearing care. Both strategies demonstrated to be feasible by their success in recruiting participants who contributed to the effort and by measurable outputs as edits. The contribution of content to Wikimedia platforms as part of education activities provided a more robust result. Wiki4WorldHearingDay2023 145 participants (78 from educational programs) contributed 167,000 words, 258 + references and 140 images to 322 Wikipedia articles (283 existing and 39 new ones), which were viewed 16.5 million times. Contributions occurred in six languages. Edits in Portuguese, mainly by those involved in educational programs, led the number of articles (226 or 70.2%) that were expanded or created during the 5-month tracking period. Conclusions The elements that contributed to the success of the studied strategies include an impact topic, coordination with educational programs, international multidisciplinary collaborations, the dissemination of the initiative in several platforms, connection with a robust local Wikimedia affiliate, and the use of a technical infrastructure that provides metrics and coordination mechanisms. Graphical abstract