Valuing the "Burden" and Impact of Rare Diseases: A Scoping Review

Introduction: Rare diseases (RDs) are a severe, chronic, degenerative and often life-threatening group of conditions affecting more than 30 million people in Europe. Their impact is often underreported and ranges from psychological and physical symptoms seriously compromising quality of life. There...

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Main Authors: Julien Delaye (Author), Pasquale Cacciatore (Author), Anna Kole (Author)
Format: Book
Published: Frontiers Media S.A., 2022-06-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
Copy 1 Available