Valuing the "Burden" and Impact of Rare Diseases: A Scoping Review
Introduction: Rare diseases (RDs) are a severe, chronic, degenerative and often life-threatening group of conditions affecting more than 30 million people in Europe. Their impact is often underreported and ranges from psychological and physical symptoms seriously compromising quality of life. There...
Saved in:
Main Authors: | Julien Delaye (Author), Pasquale Cacciatore (Author), Anna Kole (Author) |
---|---|
Format: | Book |
Published: |
Frontiers Media S.A.,
2022-06-01T00:00:00Z.
|
Subjects: | |
Online Access: | Connect to this object online. |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
Similar Items
-
The burden of non-communicable diseases: A scoping review focus on the context of India
by: Swathi Ramesh, et al.
Published: (2023) -
Burden of non-communicable diseases among Syrian refugees: a scoping review
by: Farah Naja, et al.
Published: (2019) -
The global burden of lipodystrophy, a rare disease
by: Cristina A. Meehan, et al.
Published: (2016) -
The Methodological Quality and Challenges in Conducting Economic Evaluations of Newborn Screening: A Scoping Review
by: Pasquale Cacciatore, et al.
Published: (2020) -
Work participation in adults with rare genetic diseases - a scoping review
by: Gry Velvin, et al.
Published: (2023)