Alberta Family Integrated Care™ and Standard Care: A Qualitative Study of Mothers' Experiences of their Journeying to Home from the Neonatal Intensive Care Unit

Globally, one in ten infants is born preterm. Most preterm infants require care in a level II Neonatal Intensive Care Unit (NICU), which are highly technological critical care environments that can be overwhelming for parents. Alberta Family Integrated Care (AB-FICare™) is an approach to care that p...

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Bibliographic Details
Main Authors: Rachael Dien (Author), Karen M. Benzies (Author), Pilar Zanoni (Author), Jana Kurilova (Author)
Format: Book
Published: SAGE Publishing, 2022-06-01T00:00:00Z.
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Summary:Globally, one in ten infants is born preterm. Most preterm infants require care in a level II Neonatal Intensive Care Unit (NICU), which are highly technological critical care environments that can be overwhelming for parents. Alberta Family Integrated Care (AB-FICare™) is an approach to care that provides strategies to integrate parents into their infant's care team. This sub-study is the first to compare mothers' experiences in the context of AB-FICare™ and standard care. Semi-structured interviews with mothers from AB-FICare™ ( n = 14) and standard care ( n = 12) NICUs were analyzed using interpretive description informed by grounded theory methods. We identified a major theme of Journeying to Home with six categories: Recovering from Birth, Adapting to the NICU, Caring for Baby, Coping with Daily Disruption, Seeing Progress, and Supporting Parenting. Mothers in the AB-FICare™ group identified an enhancement to standard care related to building reciprocal trust with healthcare providers that accelerated Journeying to Home.
Item Description:2333-3936
10.1177/23333936221097113