Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies
Objective: To understand parents' of children with developmental and epileptic encephalopathies needs and preferences for psychological resources. Methods: Using a person-based approach, a multidisciplinary panel of clinician and researchers (n = 9) hosted a priority-setting workshop to 1) unde...
Saved in:
Main Authors: | Suzanne M. Nevin (Author), Claire E. Wakefield (Author), Ann Dadich (Author), Fleur LeMarne (Author), Rebecca Macintosh (Author), Erin Beavis (Author), Rani Sachdev (Author), Ann Bye (Author), Kenneth Nunn (Author), Elizabeth E. Palmer (Author) |
---|---|
Format: | Book |
Published: |
Elsevier,
2022-12-01T00:00:00Z.
|
Subjects: | |
Online Access: | Connect to this object online. |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
Similar Items
-
Listening to the Voice of the Hospitalized Child: Comparing Children's Experiences to Their Parents
by: Haneen Ali, et al.
Published: (2022) -
Suite Mentale
by: Garrett, Randall, 1927-1987; Emshwiller, Ed, 1925-1990 [Illustrator] -
Scoping the Priorities and Concerns of Parents: Infodemiology Study of Posts on Mumsnet and Reddit
by: Christopher Thornton, et al.
Published: (2023) -
Treatment Priorities of Parents of Children With Cerebral Palsy: A Scoping Review
by: Zahra Morovati, et al.
Published: (2024) -
Occupational Performance Priorities of Children With Cerebral Palsy From the Parents' Perspective
by: Nasrin Jalili, et al.
Published: (2019)