Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life
Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...
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Hoofdauteur: | Pilo, Cinzia (auth) |
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Andere auteurs: | Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth) |
Formaat: | Elektronisch Hoofdstuk |
Taal: | Engels |
Gepubliceerd in: |
Florence
Firenze University Press
2021
|
Reeks: | Proceedings e report
132 |
Onderwerpen: | |
Online toegang: | OAPEN Library: download the publication OAPEN Library: description of the publication |
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