Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

Volledige beschrijving

Bewaard in:
Bibliografische gegevens
Hoofdauteur: Pilo, Cinzia (auth)
Andere auteurs: Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth)
Formaat: Elektronisch Hoofdstuk
Taal:Engels
Gepubliceerd in: Florence Firenze University Press 2021
Reeks:Proceedings e report 132
Onderwerpen:
Online toegang:OAPEN Library: download the publication
OAPEN Library: description of the publication
Tags: Voeg label toe
Geen labels, Wees de eerste die dit record labelt!