Search Results - "enfermedades raras"

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  1. 41
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    Revisión de los aspectos éticos en la investigación biomédica: la experiencia del Comité de Ética del Centro de Investigación sobre el Síndrome del Aceite Tóxico y Enfermedades Raras (CISATER) Review of ethical aspects in biomedical research: The experience of the Ethics Committee of the Center for Toxic Oil Syndrome and Rare Diseases (CISATER) by M.C. Martín-Arribas, M. Posada, B. Terracini, F. Carballo, I. Abaitua

    Published 2003
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  2. 42
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    NECESSIDADES PRIORITÁRIAS REFERIDAS PELAS FAMÍLIAS DE PESSOAS COM DOENÇAS RARAS by Geisa dos Santos Luz, Mara Regina Santos da Silva, Francine DeMontigny

    Published 2016
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  3. 43
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    Review of Rare diseases. Contributions to social and biomedical research, by Juan R. Coca (ed.) by Susana Gómez Redondo

    Published 2019
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  4. 44
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    Health and socio-educational needs of the families and children with rare metabolic diseases: Qualitative study in a tertiary hospital by Eva María Tejada-Ortigosa, Katherine Flores-Rojas, Laura Moreno-Quintana, María Carmen Muñoz-Villanueva, Juan Luis Pérez-Navero, Mercedes Gil-Campos

    Published 2019
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  5. 45
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    Implementation of programmes for the transition of adolescents to adult care by Antonio Moreno-Galdó, Maria Creu Regné-Alegret, María Angeles Aceituno-López, María Camprodón-Gómez, Sergi Martí-Beltran, Roser Lara-Fernández, Mireia del-

    Published 2023
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  6. 46
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    Mowat-Wilson Syndrome as a Differential Diagnosis in Patients with Congenital Heart Defects and Dysmorphic Facies by Pachajoa H, Gomez-Pineda E, Giraldo-Ocampo S, Lores J

    Published 2022
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  7. 47
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    Participant-funded clinical trials on rare diseases by Rafael Dal-Ré, Francesc Palau, Encarna Guillén-Navarro, Carmen Ayuso

    Published 2020
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  8. 48
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    Importance of national and international registries of inborn errors of metabolism by Roberto Giugliani

    Published 2014
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  9. 49
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    Uncommon Diseases: a Look from Pediatrics by Jan Oneil González Ramos, Lisbel Aguilar Lezcano

    Published 2019
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  10. 50
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    Las enfermedades minoritarias en Galicia. Un reto, una oportunidad y una obligación para el médico internista by Alvaro Hermida Amejeiras

    Published 2021
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  11. 51
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    Uncommon Diseases in Pediatric Age: Commemoration in Cienfuegos of an Essential Event for Cuban Public Health by Jan O´neil González Ramos, Belkis González Aguiar

    Published 2020
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  12. 52
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    National Registry of Rare Diseases by Yadnil Elizabeth Gómez Vázquez, Onelis Góngora Gómez

    Published 2020
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  13. 53
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    Marfan Syndrome: Regarding Two Cases by Elsy Roxana Geroy Moya, María Quiñones Hernández, Anaelys Acosta Hernández

    Published 2020
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  14. 54
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    Uncommon Diseases in Pediatric Age: Commemoration in Cienfuegos of an Essential Event for Cuban Public Health by Jan O´neil González Ramos, Belkis González Aguiar

    Published 2020
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  15. 55
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    Marfan Syndrome: Regarding Two Cases by Elsy Roxana Geroy Moya, María Quiñones Hernández, Anaelys Acosta Hernández

    Published 2020
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  16. 56
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    National Registry of Rare Diseases by Yadnil Elizabeth Gómez Vázquez, Onelis Góngora Gómez

    Published 2020
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  17. 57
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    Still´s disease in adults. Case presentation by Carlos García Gómez, Claudia Tamara Fernández González, Osvaldo Rodríguez Morales, Javier Acosta Quintana

    Published 2018
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  18. 58
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    Enfermedad de Niemann-Pick: un enfoque global by Diana Villamandos García, Alejandro Santos-Lozano

    Published 2014
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  19. 59
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    Formulación magistral en pacientes con genodermatosis. Impacto en la calidad de vida: un estudio transversal by M. Oro-Ayude, A. Batalla, C. Dávila-Pousa, L. González-Freire, Á. Flórez

    Published 2022
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  20. 60
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    Solitary Mastocytoma in Pediatrics. Case Report and Literature Review by Juan Carlos Yanes Macías, Mery Rosa Betancourt Trujillo, Lino Arístides Sánchez Galván

    Published 2020
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