Canlyniadau Chwilio - Katherine L. Gooch

Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation gan Carolyn E. Schwartz, Roland B. Stark, Ivana F. Audhya, Katherine L. Gooch

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Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study gan Carolyn E. Schwartz, Roland B. Stark, Katrina Borowiec, Ivana F. Audhya, Katherine L. Gooch

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Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United States gan Shelagh M. Szabo, Ivana F. Audhya, David Feeny, Peter Neumann, Daniel C. Malone, Katherine L. Gooch

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Assessing the value of delandistrogene moxeparvovec (SRP-9001) gene therapy in patients with Duchenne muscular dystrophy in the United States gan Alexa C. Klimchak, Lauren E. Sedita, Louise R. Rodino-Klapac, Jerry R. Mendell, Craig M. McDonald, Katherine L. Gooch, Daniel C. Malone

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Estimating health state utilities in Duchenne muscular dystrophy using the health utilities index and EQ-5D-5L gan Ivana F. Audhya, Shelagh M. Szabo, Andrea Bever, Fiona O'Sullivan, Daniel C. Malone, David Feeny, Peter Neumann, Susan T. Iannaccone, P. Jayasinghe, Katherine L. Gooch

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