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    Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study

    Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study by Jessica Warnink-Kavelaars, Anita Beelen, Sarah Dekker, Frans Nollet, Leonie A. Menke, Raoul H. H. Engelbert

    Published 2019
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