Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study
Abstract Background Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary systems and facial features. Although the clinical...
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| Main Authors: | , , , , , |
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| Format: | Book |
| Published: |
BMC,
2019-07-01T00:00:00Z.
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| Subjects: | |
| Online Access: | Connect to this object online. |
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Internet
Connect to this object online.3rd Floor Main Library
| Call Number: |
A1234.567 |
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| Copy 1 | Available |