Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

Whakaahuatanga katoa

I tiakina i:
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Kaituhi matua: Pilo, Cinzia (auth)
Ētahi atu kaituhi: Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth)
Hōputu: Tāhiko Wāhanga pukapuka
Reo:Ingarihi
I whakaputaina: Florence Firenze University Press 2021
Rangatū:Proceedings e report
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Urunga tuihono:DOAB: download the publication
DOAB: description of the publication
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DOAB: download the publication
DOAB: description of the publication

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