Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

Full beskrivning

Sparad:
Bibliografiska uppgifter
Huvudskapare: Pilo, Cinzia (auth)
Övriga skapare: Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth)
Materialtyp: Elektronisk Bokavsnitt
Språk:engelska
Publicerad: Florence Firenze University Press 2021
Serie:Proceedings e report
Ämnen:
Länkar:DOAB: download the publication
DOAB: description of the publication
Taggar: Lägg till en tagg
Inga taggar, Lägg till första taggen!