Communication Needs for Individuals With Rare Diseases Within and Around the Healthcare System of Northern Ireland

Objective: By definition a rare disease affects fewer than 1 in 2,000 people but collectively 1 in 17 people are affected at some time in their lives. Rare disease patients often describe feeling isolated and unsupported. The needs of individuals living with rare disease(s) are not well met globally...

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Bibliographic Details
Main Authors: Ashleen L. Crowe (Author), Amy Jayne McKnight (Author), Helen McAneney (Author)
Format: Book
Published: Frontiers Media S.A., 2019-08-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
Copy 1 Available