Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures

• Main Authors: Christine Kay (Author), Isabelle Audo (Author), Christel Naujoks (Author), Claudio Spera (Author), M. Dominik Fischer (Author), Jane Green (Author), Todd Durham (Author), Nicola Williamson (Author), Helena Bradley (Author), Melissa Barclay (Author), Joel Sims (Author), Judit Banhazi (Author), Francesco Patalano (Author)
• Format: Book
• Published: SpringerOpen, 2023-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA) are rare inherited retinal degenerative disorders. The associated visual impairments have significant impacts on patients' vision-dependent activities of daily living (ADL), mobility, and distal health-related qu...