How do people with neurofibromatosis type 1 (the forgotten victims) live? A grounded theory study

Abstract Background Neurofibromatosis type I (NF1) is a rare genetic disorder, associated with some physical symptoms including spots and tiny bumps on the skin, and internal organ involvement. People suffering from neurofibromatosis face various challenges in their daily lives. However, there is li...

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Hlavní autoři: Samira Foji (Autor), Eesa Mohammadi (Autor), Akram Sanagoo (Autor), Leila Jouybari (Autor)
Médium: Kniha
Vydáno: Wiley, 2022-04-01T00:00:00Z.
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