Engaging patients in identifying risk factors for ALS
While policy-driven discourses promote patient engagement in research, its practice is severely limited. Drawing on participant observations and interviews conducted in 2021, we describe a process of research collaboration with amyotrophic lateral sclerosis (ALS) patients and their relatives to modi...
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| Main Authors: | , , , , |
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| Format: | Book |
| Published: |
Elsevier,
2022-12-01T00:00:00Z.
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| Subjects: | |
| Online Access: | Connect to this object online. |
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Internet
Connect to this object online.3rd Floor Main Library
| Call Number: |
A1234.567 |
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| Copy 1 | Available |