"Fighting the system": Families caring for ventilator-dependent children and adults with complex health care needs at home

• Główni autorzy: Nielsen Erik W (Autor), Tollåli Terje (Autor), Dybwik Knut (Autor), Brinchmann Berit S (Autor)
• Format: Książka
• Wydane: BMC, 2011-07-01T00:00:00Z.
• Hasła przedmiotowe: article
• Dostęp online: Connect to this object online.

<p>Abstract</p> <p>Background</p> <p>An increasing number of individuals with complex health care needs now receive life-long and life-prolonging ventilatory support at home. Family members often take on the role of primary caregivers. The aim of this study was to explo...