Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services - evidence from 'this sickle cell life' research

• Main Authors: Alicia Renedo (Author), Sam Miles (Author), Subarna Chakravorty (Author), Andrea Leigh (Author), Paul Telfer (Author), John O. Warner (Author), Cicely Marston (Author)
• Format: Book
• Published: BMC, 2019-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Young people's experiences of healthcare as they move into adult services can have a major impact on their health, and the transition period for young people with sickle cell disease (SCD) needs improvement. In this study, we explore how young people with SCD experience heal...