Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

• Main Authors: Marlene Sinclair (Author), Julie E M McCullough (Author), David Elliott (Author), Paula Braz (Author), Clara Cavero-Carbonell (Author), Lesley Dornan (Author), Anna Jamry-Dziurla (Author), Ana João Santos (Author), Anna Latos-Bieleńska (Author), Ausenda Machado (Author), Lucía Páramo-Rodríguez (Author)
• Format: Book
• Published: JMIR Publications, 2021-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundLimited research evidence exists on the development of web-based platforms for reciprocal communication, coproduction research, and dissemination of information among parents, professionals, and researchers. This paper provides learning and the outcomes of setting up a bespoke web-based pl...