Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project

• Main Authors: Ana Diaz (Author), Dianne Gove (Author), Mia Nelson (Author), Michael Smith (Author), Claire Tochel (Author), Christophe Bintener (Author), Amanda Ly (Author), Christin Bexelius (Author), Anders Gustavsson (Author), Jean Georges (Author), John Gallacher (Author), Cathie Sudlow (Author)
• Format: Book
• Published: Wiley, 2021-06-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Dementia outcomes include memory loss, language impairment, reduced quality of life and personality changes. Research suggests that outcomes selected for dementia clinical trials might not be the most important to people affected. Objective One of the goals of the 'Real worl...