Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases: an international, cross-disciplinary, patient-centered approach (PAVE Consortium)

• Main Authors: Deborah A. Marshall (Author), Brittany Gerber (Author), Gillian R. Currie (Author), Jordi Antón (Author), Lien De Somer (Author), Michelle Dey (Author), Tsipi Egert (Author), Yona Egert (Author), Lia Henan (Author), Jens Klotsche (Author), Laura Martinez Mifsut (Author), Kirsten Minden (Author), Christophe Normand (Author), David Porte (Author), Rotraud K. Saurenmann (Author), Joost F. Swart (Author), Yosef Uziel (Author), Jennifer Wilson (Author), Carine Wouters (Author), Amit Ziv (Author), Susanne M. Benseler (Author), on behalf of the PAVE Consortium (Author)
• Format: Book
• Published: BMC, 2024-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Juvenile idiopathic arthritis (JIA) refers to a heterogeneous group of rheumatic conditions in children. Novel drugs have greatly improved disease outcomes; however, outcomes are impacted by limited awareness of the importance of early diagnosis and adequate treatment, and by dif...