Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases: an international, cross-disciplinary, patient-centered approach (PAVE Consortium)

• Главные авторы: Deborah A. Marshall (Автор), Brittany Gerber (Автор), Gillian R. Currie (Автор), Jordi Antón (Автор), Lien De Somer (Автор), Michelle Dey (Автор), Tsipi Egert (Автор), Yona Egert (Автор), Lia Henan (Автор), Jens Klotsche (Автор), Laura Martinez Mifsut (Автор), Kirsten Minden (Автор), Christophe Normand (Автор), David Porte (Автор), Rotraud K. Saurenmann (Автор), Joost F. Swart (Автор), Yosef Uziel (Автор), Jennifer Wilson (Автор), Carine Wouters (Автор), Amit Ziv (Автор), Susanne M. Benseler (Автор), on behalf of the PAVE Consortium (Автор)
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• Опубликовано: BMC, 2024-08-01T00:00:00Z.
• Предметы: article
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Abstract Background Juvenile idiopathic arthritis (JIA) refers to a heterogeneous group of rheumatic conditions in children. Novel drugs have greatly improved disease outcomes; however, outcomes are impacted by limited awareness of the importance of early diagnosis and adequate treatment, and by dif...