Measuring Health-Related Quality of Life in Tuberous Sclerosis Complex - Psychometric Evaluation of Three Instruments in Individuals With Refractory Epilepsy

• Главные авторы: Petrus J. de Vries (Автор), David N. Franz (Автор), Paolo Curatolo (Автор), Rima Nabbout (Автор), Maureen Neary (Автор), Fabian Herbst (Автор), Kate Sully (Автор), Elaine Brohan (Автор), Bryan Bennett (Автор), John A. Lawson (Автор)
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• Опубликовано: Frontiers Media S.A., 2018-08-01T00:00:00Z.
• Предметы: article
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Tuberous sclerosis complex (TSC) is a rare genetic disease associated with significant disease burden and considerable impact on health-related quality of life (HRQL). Currently no disease-specific clinical outcome assessments evaluate HRQL in individuals with TSC. A multi-center phase III study EXI...