Siblings' life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study

• Autori principali: Carolyn E. Schwartz (Autore), Elijah Biletch (Autore), Richard B. B. Stuart (Autore), Bruce D. Rapkin (Autore)
• Natura: Libro
• Pubblicazione: SpringerOpen, 2022-09-01T00:00:00Z.
• Soggetti: article
• Accesso online: Connect to this object online.

Abstract Background The inevitable and progressive loss of independence in Duchenne Muscular Dystrophy (DMD) patients may have an impact on their siblings' life aspirations. The present cross-sectional case-control study investigated how aspirations differed between brothers and sisters of peop...