Rarecare: A policy perspective on the burden of rare diseases on caregivers in Latin America

• Main Authors: Ariadne Guimarães Dias (Author), Antoine Daher (Author), Lucy Barrera Ortiz (Author), Sonia Carreño-Moreno (Author), Sylvia R. Hafez H (Author), Angela Marie Jansen (Author), Mariana Rico-Restrepo (Author), Lorena Chaparro-Diaz (Author)
• Format: Book
• Published: Frontiers Media S.A., 2023-03-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

In Latin America (LA), 40-50 million people live with rare diseases (RDs) that require constant monitoring, care, and attention. Caregivers help them with their basic life activities and medication administration, which they would otherwise be unable to perform. Family caregivers complement healthca...