Evaluation of an educational conference for persons affected by hereditary frontotemporal degeneration and amyotrophic lateral sclerosis

• Main Authors: Laynie Dratch (Author), Weiyi Mu (Author), Elisabeth McCarty Wood (Author), Brianna Morgan (Author), Lauren Massimo (Author), Cynthia Clyburn (Author), Tanya Bardakjian (Author), Murray Grossman (Author), David J. Irwin (Author), Katheryn A.Q. Cousins (Author)
• Format: Book
• Published: Elsevier, 2023-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective: There are limited studies exploring the support and education needs of individuals at-risk for or diagnosed with hereditary frontotemporal degeneration (FTD) and/or amyotrophic lateral sclerosis (ALS). This study evaluated a novel conference for this population to assess conference effica...